PKUDay 2020
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Events around Internationl PKU Day 2020
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Research in #PKU is difficult as there are only limited numbers of participants. Here is a first try to take it into our own hands - check out the Research Platform I created - starting with this entry survey: https://www.pku.at/fvym9t @official_espku @PKU_Day @NSPKU @NPKUA_Info
Just launched a short link service just for #PKU 🙂 Go check it out: https://www.pku.at/ - here is an example: https://www.pku.at/espku @official_espku @PKU_Day @PKUBoard @NPKUA_Info @NSPKU @canpku
Good to hear all of you at our first online ESPKU 2020 edition’s conference. @PKU_Day @NSPKU @sheehangilroy @NowPku @MetabolicsBCH All together, from around the world, united for the same purpose. 😊😊😊🎉🎉😀😀
Happy Spooky (low protein and safe) Halloween. 🎃 🎃 🎃 👻 👻 👻 👻. @PKU_Day @NSPKU @MetabolicsBCH @NowPku
Today at ESPKU meeting @official_espku Prof. Eileen Treacy @eileentreacy3 remembering us #PKU is not just a paediatric disease and all remaining challenges. Excellent. @PKU_Day @Metab_ERN
Happy international PKU day! Our little PKU'er olivia, 6months old but is well ahead! 3 exchanges a day! Controlled levels last couple of time phew! And now she's trying to crawl! 😍 we are so proud of you little lady! Just goes to show we cam do this!💖 @PKU_Day @NSPKU @macdonj
Protein free chocolate cupcakes with salted caramel icing have gone down a treat with my non pku family. My pku son is only 6months old so is unable to try these yet but we certainly enjoyed them for him. Happy international pku day @PKU_Day @NSPKU
To celebrate international pku day I've made my 1st ever low protein pizza. I'm new to this so unsure of what the exchange of the mevalia pizza base I'm told either free or 1/2. Toppings are 1 ex on 1st pizza for sweetcorn and 1 ex for baked beans on second pizza @PKU_Day
Happy international pku day. This is my pku warrior always full of smiles. Today we introduce him to his first gram of protein and pku explore and he took it like a boss.from a 5lb 9 dot to 13lbs 8 in 6 months. Hes doing amazing and I couldnt be any prouder @pkuday2020 @PKU_Day
📢 Today we celebrate International #Phenylketonuria Day lead by @PKU_Day! This inherited metabolic disorder affecting about 1 in every 10,000 children born in Europe was one of the case studies of the second round of the #VoT project.
🔍 http://bit.ly/2UQydo5
#PKUDay
