PKUDay 2020

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Events around Internationl PKU Day 2020






Did you celebrate International PKU Day last week? This recipe for low protein cake pops is a quick and easy was to celebrate PKU and the low protein diet: https://www.lowproteinconnect.com/Recipes/Desserts/Lemon-Cake-Pops/
#InternationalPKUDay #PKUDay2020 #LowProteinDiet #LowProtein #LowProteinConnect #LowProConnect

Huge thanks @FitzgeraldFrncs from @PKU_Ireland for cohosting today’s 2nd @official_espku #virtual EuropeanParliamentCross PartyAllianceRoundtable: AIM #LifelongCare #PKU. Brilliant discussion + consensus from all > critical unmet need & best practice aim #PKUDay2020 #RareDisease

Huge thanks @FitzgeraldFrncs from @PKU_Ireland for cohosting today’s 2nd @official_espku #virtual EuropeanParliamentCross PartyAllianceRoundtable: AIM #LifelongCare #PKU. Brilliant discussion + consensus from all > critical unmet need & best practice aim #PKUDay2020 #RareDisease
Huge thanks @FitzgeraldFrncs from @PKU_Ireland for cohosting today’s 2nd @official_espku #virtual EuropeanParliamentCross PartyAllianceRoundtable: AIM #LifelongCare #PKU. Brilliant discussion + consensus from all > critical unmet need & best practice aim #PKUDay2020 #RareDisease
Frances Fitzgerald MEP@FitzgeraldFrncs

Delighted to co-host this mornings #virtual roundtable with @official_espku on ensuring lifelong access to treatment and care in PKU.

Thanks to all MEPs who attended 👏🏻

Today at ESPKU meeting @official_espku Prof. Eileen Treacy @eileentreacy3 remembering us #PKU is not just a paediatric disease and all remaining challenges. Excellent. @PKU_Day @Metab_ERN

Thanks those who took part in work-out for #PKUday2020, & for the lovely comments, sorry couldn't reply live but seen them since & made me 🤣. For those who have asked if the video is still available it is on the #NSPKU YouTube channel: with other videos.

#PKUDay #NSPKU
A massive thank you to the large number of extremely talented young people (some VERY young!) who made our day special by celebrating with drawings, paintings, handprints, cakes, dances, messages, explanations & all round
Creative #pku Genius!
You made our day! 😍

#PKUDay2020
Thanks to TOUGH questionners
@VickyAncell (both Lucie & Sophie) @kathythompson22
@chelseagloverx
Scotland @mrs_martin_2012, Boyd & Katy
@CeryssP10 @RowlandsTesni @ClaireRowlands8
@chriscassidy86 & Daragh, AnneMarie & her twins
You have all been BRILLIANT
📣📣📣

Twitter feed video.
NSPKU@NSPKU

#PKUDay2020
A Huge "Thank you"
@LouLamaris - energised start
Anne Green, telling Sheila Jones' story so well
@LizTwistMP celebrating talent amongst our children w #pku and then kicking off NSPKU Questions; @Rees4Neath @neilgraysnp answering questions
@TomChimiak star + director

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